A Call of Hope

Hi Friends! It’s been a while since I’ve written, mainly because life has been busy and there hasn’t been any major news. But, there’s some exciting news to share now! On cyber Monday, totally out of the blue, I received a call from the Retina Foundation where our entire family had our genetic testing done. This call was from the doctor there and he said he had been contacted by Doctor Pierce of Harvard University looking for candidates for genetic testing of one of the particular genes Skylee (and Duke) carry. They are planning to start testing on children as early as age three which is younger than any other testing I have heard of until now. We would likely need to travel to the clinic a few times during the process which could be over the course of a year or two.  We are currently waiting to hear from Dr. Pierce to learn more details so this is really all we know right now but we ask for your prayers as we learn more and make decisions. We are so happy to have this opportunity but here's a lot we will need to understand and we’ll need to do our own research.  So we pray we have all the information and ask all the right questions along the way.  At this young age, it will ultimately be left to Matt and I to make the right decision.

XOXO

km

Picture description: Skylee, age 2 walking down wooden steps using her cane.  

Picture description: Duke, age 15 months, sitting independently on wooden steps.